Purpose Parents with physical disabilities experience social marginalization, reflecting pervasive ableism and stigma. It is critical to understand their experiences related to parenting to develop targeted and supportive programs. The primary objective was to examine the extent of existing knowledge …

The fundamental premise of this chapter is that technology-mediated remote work in and of itself is not necessarily a panacea for disability inclusion. This necessitates a focus on what technologies enables individuals to do (and not do). This chapter draws on a mixed-methods (a survey and qualitative …

The study explored how chronic sorrow in parents of disabled children impacts everyday interactions between parents and professionals in caregiving contexts. Chronic sorrow, characterized by ongoing feelings of grief and loss in parents, related to their child’s disability, is increasingly recognized …

Background:   Intellectual disability (ID) is a developmental disorder that causes considerably below-average intellectual performance and adaptive behaviour. In the context of the present study, families raising a child with ID are reported to experience multiple challenges that appear not to be well …

Over the last five years, I have found myself circling around four key concepts: Performance. Philosophy. Animals. And Equality. And I have found myself thinking in and with circles. It began with the various references to circles we can find in the philosophy of Henri Bergson - in his idea of the field …

This study explores the experiences of women with disabilities in Makurdi, Nigeria, focusing on their family relationships, the forms of discrimination they face, their access to support services, and the influence of cultural norms on their experiences of violence. The research seeks to answer four …

Wil je meer weten over wat een gezonde leefstijl is voor mensen met een lichte en (zeer) ernstige verstandelijke en meervoudige beperking (EMB)? En welke rol jij als zorgverlener kan hebben?

Objective: The majority of parents with a disabled child experience chronic sorrow, characterized by recurrent feelings of grief and loss related to their child’s disability. There is a significant lack of research on parents’ lived experiences of chronic sorrow, which limits our ability to understand …

Chronic sorrow involves parents’ enduring grief due to their child’s disability. This stems not only from the recurring painful reality parents face, which differs from the life they had hoped for their children, families, and themselves but from also being confronted with societal and personal norms …

Visual research has historically been productive in foregrounding marginalised voices through photovoice as alternative to the written and oral forms of participation that dominate public participation. Photovoice projects have however been slow to leverage digital and spatial technologies for reworking …